New Achievement Unlocked: Mapping Space Through Sound
Sat, Jan. 31, 2026
I laid down in bed, eyes heavy, limbs and vestibular system wobbly with exhaustion, cuddled with EJ, and hoped for sleep. Promptly my brain booted up and refused sleep. Why?! 😫
I’ve noticed something interesting lately. When it’s super dark in my room—after I turn off the soft, under-bed lighting at night—I get agitated and clumsier when my ears are covered by my (sleep) earplugs or noise cancelling headphones. It’s like I can’t tell where I am in space and can easily run into things even though I can just make out shapes in the room, even though I’m precisely aware of where everything is spatially, even with my eyes closed. But with my ears closed, I can’t manage. However, when I can hear, I have better balance, the sounds of the room orient me so I can navigate. I think I’m starting to pick up on spatial noises in new detail! I noticed it at the ER and recent clinic visits. I could ‘visualize’ the rooms by hearing where everyone was and how they sounded in the space, the room tone helped define the volume and area for me. I can’t hear room tone on its own, but I can tell how big a space is and how it’s laid out by the way noise sounds in it because of room tone, even through my noise protection! It’s pretty fucking cool! I’m also really good at 3D spatial visualization (even before my interior design training), this has helped me understand space, navigate quickly and with ease. I also have excellent memory for things I’ve touched and put away in particular locations. I can remember spatial locations I interacted with in vivid detail. Great spatial memory and visualization is a trait many dyslexic folks report having.
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We’ve been successful at reintroducing foods on the low fiber list! I can eat all of these now—as long as they’re prepared fresh, cooked the minimum amount of time, and veggies are steamed only (I also have histamine interlace):
- GF pancakes, plain
- White wheat pasta
- White potatoes
- Sweet potatoes
- Carrot
- Zucchini
- Salmon (including sashimi)
- Cod
- Unaged, beef filet steak
- Chomps sea salt beef sticks
- Apple juice
- Rice cakes
- Sunflower seed butter
- Nori seaweed
- Ground turkey
- Ground lamb
- Ground chicken
- Chicken breast (special cooked)
- Cranberry juice, unsweetened
- Ghee
- Olive, algae & avocado oils
- Eggs
- Collagen
- Bella mushrooms, cooked
I plan to introduce steamed beets into my diet next week. I anticipate it going so well that it will be all my body wants to eat for a couple weeks. Right now I’m hooked on ghee + pasta and it’s been with reluctance that my body has allowed me to add meat or carrots to it. I’m already over sweet potatoes, and rice cakes + sunflower seed butter. My stools are not as watery any more either. All good things for my digestive system!
Napped on and off between 3:30a and 8a. Slept from 8:30a-3:40p. Feeling somewhat decent now I slept close to 11 hrs. Looking forward to visiting with our friends who are staying with us for a while in their RV. I especially love watching them walk their cat. They arrived when I was sleeping.
I woke up to messages from lots of friends, and a metamour. It felt nice to receive so much community connection.
This evening I’m going to help my nesting partner clean our Berkey filters. And yes, we have a detailed, step-by-step protocol for that, too 🤓😁
My nesting partner asked if the muffins in the grocery delivery today were for them. They felt supported by all my purchases and pleasantly surprised by the secret addition of muffins just for them 😍🥰
My blood pressure is normally a bit low, but the past few days has been lower than my usual (88/55, pulse 76 today). I wonder why it’s lower than usual and why I’m on the low end of typical. Is it from these vampires? 🧛🩸 I only started monitoring my BP after I had fibroids (before their diagnosis), I have no idea what it was before them. It’s something I want to discuss with my PCP. And now I wonder how many people with low BP—especially autistic folk—go to a doctors office/clinic, get their BP reading and the practitioner thinks they’re not stressed or anxious, and in fact quite healthy because they have really good numbers 🤦
I just learned about this relating tool called Decide 10, reblogged by @borderlinereminders. I’m really fascinated by it. The post had great examples and reasoning behind how it works and why, especially for disabled and borderline folks. I love the way this tool makes clear how invested or capable each person is when making a decision together, how it can probably bypass RSD, or bypass a lengthy conversation of what a ‘maybe’ even means. It feels better than the “yes means yes” and “no means no” rhetoric that is constructive but limited, which also doesn’t leave room for disabled or chronically ill people to share a middle area without extra effort. The premise in Decide 10 is that when asking for something from another person, or deciding something together, each person shares where they’re at on a scale from 1-10 (low-high) for that thing, and when the numbers are added up (for 2 people), if they equal 10 or greater then the thing happens—a simple way to calculate compromise. There’s nuance and alternate uses outlined in the article which I greatly appreciated. I imagine if there are more than two people, the arithmetic would need adjusting, but overall it seems like a helpful shorthand for gauging where someone is at—after the tool has been learned and practiced of course, learning this tool might make it slow and cumbersome to use for a while. I wonder if my nesting partner and I might implement something like this… 🧐💭 I could see it being useful for us, I’m sure we’d have lots of customizations 😆
7p We have just commenced the cleaning of the Berkey. I’m managing executive function by reading off each step to my nesting partner via voice chat. They are currently on step 3 (of 13): pre-cleaning all surfaces.
9p We finished cleaning the Berkey 🎉 I made a doc that was better organized than our chat message (with the instructions I had previously created). I even added a couple items when we were both confused on what an instruction meant. It’s only taken us four iterations to get this document to where it is now. Next time will be smoother, hopefully no instructions will need to change after this and it’ll just flow. I’m so freak’n excited about how ‘clean’ our Berkey Cleaning document is!! I got hyper focused on it, it’s so well formatted now 😁 Proud of us 🎉🕺
We enjoyably voice chatted for 1.5 hrs after, until my nesting partner declared they turned into a pumpkin 🎃😆