#disability help

My phone is broken and I’m in a lot of debt ($2000 of cc debt and $550 to ca$happ) and I cant consistently work anymore without major issues that land me in the ER working beyond 6 hours a week.

All to say that my birthday is March 26th and all I want is to not owe as much or to possibly have a fun or needed item

My ca$happ is $sleepybeing and I will leave a Amazon link of things I need with a few things I want. I am exhausted. I’m sorry for e-begging y'all.

https://www.amazon.com/hz/wishlist/ls/1RXOF50NXDZNR?ref_=wl_share

for my fellow me/cfs friends who struggle with hydration: i humbly recommend the owala. this is not an ad of any sort i am actually just so excited to have found a water bottle that works the way i need it to

reasons it works:

1. relatively lightweight

2. the spout part has a pour option and a straw option (looks like this)

ALT

this makes it so i can sip from it without sitting up, which is very helpful for rough flare-ups. it’s not spill-proof but i’m 90% sure they have an option that is. also, there is no shame in choosing a “kid’s” bottle for the spill-proof feature, i’ve done that too. owala has neutral patterns even on the kids’ options

3. very easy to wash (not dishwasher safe but i just give it a little rinsey rinsey with some dish soap probably not as often as i should and call it good)

4. keeps the water cool which is great for me because i can’t always get up and get more and i’ll be damned if i’m gonna drink lukewarm water ever

i will say, it can’t be used with hot beverages, which works fine for me since i only put water in it.

relevant info: it’s $30 (USD) for the 24oz size, i am mod/severe for reference as far as me/cfs goes, and it also doesn’t trigger my sensory issues

anyways, hydration is hard with me/cfs and honestly probably a ton of other conditions and anytime i find something that helps with ADLs i’ll reblog this post and share when i get a chance :)

hey everyone, i hate that i have to make this kind of post but i’m struggling financially.

i’m disabled, have chronic pain and can’t find work. i need to buy groceries again & i still have outstanding medical bills (that unless i pay off i can’t get more meds and ive been out of meds for two weeks. i’m on zoloft so this has been rough)

i have a fundraiser (that i made months ago) set up to help, and i also have cashapp. my goal right now is about $1,000, my medical fee is $800 or so and i’d like to better stock on groceries this time as last time i only bought a months worth

please don’t feel pressured to help or donate, simply sharing this out will help 🫶🏻

my cashapp is $spoopyfrogs

link to my fundraiser: https://chuffed.org/project/121967-help-a-disabled-person-avoid-being-unhoused

Help a disabled person pay their medical bills and/or rent

I have this thing where I can’t leave my house on my own. Like I am currently sitting outside alone outside the mall, and I know i can do it, but I feel awful, and it took an hour to convince myself to leave. I either dissociate so much and forget everything I did while out and find out I’ve missed half the thing I needed to do anyway, or I have a panic attack and stay inside.

The thing is when I’m with friends I’m fine. Like you wouldn’t be able to even tell I needed someone to come get me and take me to where we were hanging out, I can make plans. I want to leave my house, but I can only do it without mental agony while with the people in my life I trust. Hell, I’d probably be fine with strangers.

I was thinking it might be agraphobia but there’s no actual fear. Like i have the panic attack or ‘freak’ out but I’m not scared there’s nothing I’m afraid of. It’s like I’ve been made to swallow a fear that isn’t mine and handle it.

Help Needed

Hello, I’m a disabled artist who is currently being pressured by parents to get a job despite the fact that im an agoraphobe. I could really use some help. My mother already said she won’t financially support me anymore. Just a few dollars is good enough for me, so I can hold out for the year and buy essentials, and then I can move away with my sibling.

K*fi

Need help… take many energy make meals and more energy have make them myself because other people busy.. was looking into meal replacement powder

What brand should do? Don’t want lose weight if anything want gain some,, but also don’t want spend $40 on only the mix because also need buy bottles and other things.. any recommendations appreciated

Hey can I crowdsource some disability help?

I really need a new cushion for my desk chair because my hip is bad and I have arthritis in my spine. I weigh about 270lbs, so I need something that’ll stand up. The purple looking gel ones don’t work. It needs to stand up to many hours of sitting while also being supportive.

If you could include a link I would appreciate it. Don’t worry about cost, I’ll figure that out later.

Thank you!!

I’m in the process of trying to figure out what sort of cane I might need or how to go about figuring out what size and length it needs to be as well.

Does anyone have any tips or know the best way to check?

I’m roughly 5'5 and have chronic pain in my legs and body in general, I would ask a doctor but after moving away for university I’ve been discharged and it’s difficult to get referred to the service around me.

Bro something super helpful is having an able bodied friend or trusted person. They shpuld make an app for it or something. Heres what I mean.

I, like a lot of chronically ill folks or folks with chronic pain, do not know when to rest. I push myself too much, because its like. Well. Im in pain all the time, so is this. Enough? Is it enough or severe enough to call out sick?

I was discussing this dilemma with my friend today (shoutout @worth-whale) and was like “yeah i dont want to go to [thing], but i feel like I have to. And like, yes im in pain, but I dont know if its enough? Like, yeah my hip and knee and ankle all hurt and my brain feels foggy and I’m getting the start of a migraine and I’m so exhausted that i feel like im moving through jello, but most of that stuff is normal for me”

And my beloved dear friend was like “DUDE. go rest!! That sounds sucky as hell and that is something an ablebodied person would ask to leave/get rest for. Please go ask to skip [thing]”

Anyway it was very nice and affirming and helpful. I did get to go home early and rest, which helped a lot actually. So tldr; if youre ever like “is this bad enough to not do [thing?] It feels normal just. Also bad?” Ask an ablebodied person. Notice where your pain is and name it one by one. They will most likely be shocked and tell you to go rest. And then when they do tell you, listen. (If you can afford to do so. Most of the time, you can. Please rest friend.)

Quick question would seriously appreciate help n answers

Brother in law is 6 (almost 7) and severely autistic. Very little speech,, can’t watch himself all that. And loves to run out when not watched. Etc

What things could get keep his safety? His siblings take turns watching him until can get social workers,, but not sure what could really use from there because he knows how untie and undo locks. They getting new alarms and new locks but know how turn off alarm and undo locks,, and sometimes it becomes think other person is watching so no one actually watching.

Any help seriously appreciated just trying find new ways keep him safe n maybe allow new forms for sensory so don’t have run out

Idk who needs to know this but the Apple app Shortcuts has many accessibility features you can add to your phone, including one that will make a pain report for you in Notes and will ask you if you’d like Siri to read it out loud so you can tell the people around you. You can use it by going into the Shortcuts app or turn it into an icon you can tap on your home screen.

Go into the Shortcuts app, go to Gallery (it’s at the bottom), and then click the Shortcuts for Accessibility tab. Click the plus buttons on the ones that would be useful for you to add them to the main page. If you want to add one as an icon on your home screen, tap the three dots in the corner of the shortcut, click the share button, and then Add to Home Screen.

You can also customize shortcuts, make your own, or automate them. If you’ve ever used Scratch for coding, this is similar.

Here’s a Fatigue Report shortcut I customized based on the Pain Report shortcut. It’s customized to my symptoms but hopefully you can design it to be useful for you!

Shortcuts

Question for anyone whos made bag straps and stuff alike that before, is there any way to make a messenger bag have a strap that goes over both shoulders? Using a sewing machine to add an extra strap won’t be an issue if needed. We love messenger bags but due to needing to use a cane it isn’t exactly recommended to have one side have all the pressure of the bag, especially since that shoulder is the one that has to hold the cane

My legs randomly give out. And I’ll be walking. And then just fall. Because my legs seem weaker? I don’t know how explain. And idk if maybe need go to doctor or something…

There’s no other symptoms. I haven’t had recents head or neck injury. I don’t have muscle or other body pain. My legs just give out.

If yall have any advice. Or things should maybe keep look out for would appreciate it. Because it randomly started one day. Don’t even remember when. And comes and goes as please. But has done so far 5 times in one day and I’m over it

💕

Donate to Help people with disabilities in Palestine, North Gaza Strip, organized by Nour zidan

everyone help out the Jabalia Rehabilitation Society by donating, rbing, & resding their statement above!

hi my sister and her boyfriend are both about to get evicted due to their disabilities. if they cant get a place in the next couple weeks theyre gonna be homeless and i literally cant let them live like that. theyre both just looking for 1st months rent of a small place!!! im also willing to make art for donations so if you can spare a couple dollars id love for them to get it.

spreading this message in hopes that it’ll help. please donate to this gofundme

https://gofund.me/f6a2ee7b

heyyy this is for my fellow disabled and chronically I’ll friends:

I have really bad ice burns on my butt from needing to use my cold therapy machine so often and I’m not even sure how to begin treating them. Does anyone have any tips they could offer to me? One strip on my skin is really bad right now.

. I will share the message to see if anyone else can help!! 🤲🏽✨️

So hey…… what’s up…..

Hell, I don’t even know if I have any followers, I honestly think my tumblr fell to the bots a long time ago, but I have to give it a try, even if I’m just screaming out into the void, it’s better than just sitting here and doing nothing, cause that’s not really getting me anywhere.

Things have been going down hill fast for me it seems, and it feels like a roller coaster I didn’t sign up for, cause I hate roller coasters.

I’ve struggled with various respiratory issues my whole life and being Mexican, well, we fixed them however we could, ER visits when we could afford them, vaporub, praying, sana sana colita de rana, I made it to 42! And all of a sudden, my asthma is killing my lungs and now they think it might be COPD, I was supposed to see a pulmonologist in May but I had to quit my job cause they put me on oxygen and I couldn’t afford the visit, then my inhaler was $500 cause I didn’t have insurance, so I tried to stretch the one I had. My Doctor sat me down and told me I could have died. Then she paid for my inhaler out of her own pocket and made me cry.

I applied for disability in February….. it’s September, I just heard back, they need more proof so they have me doing all sorts of stuff, an xray being one of them. They take a picture of my lungs, they find out while they are there that my spine is DEGENERATING……. MY SPINE….. so that’s why I walk funny and it hurts to stand more than 5 minutes? Yes. And it’s gonna get worse. Sorry. Oh. Ok.

So now they want me to do physical therapy. But I still don’t have insurance, or a job cause, ya know, I can’t breathe, I’m on oxygen, and I can’t stand or walk right. Oh ok, guess we can just give you some pain killers, they will make you sleepy though so that won’t help with work either. Also, disability still doesn’t believe you so let’s do more tests.

So I can’t get a job, I’m walking with a cane, I need a rollator walker but I can’t afford one, I have medication right now, but I dunno if I will afford it once it runs out, I’ve done my disability determination appointment and have one more appointment with the pulmonologist before they can tell me if I’m approved for disability (trying to manifest a yes) I am however told my odds are slim and I should find a lawyer, my oxygen is $140 a month and another bill on top of everything else. I have cried more than I care to think about this month alone and it’s only the 8th.

At least it’s fall.

Please donate if you are so inclined. I won’t ask for the moon or stars. I just want to have a Pumpkin Spice, maybe a scone. I just need some hope.

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